tag:blogger.com,1999:blog-25828936.post2707158272381536067..comments2023-10-15T03:05:58.172-05:00Comments on Long Day With Short People: The Turmanatorshttp://www.blogger.com/profile/15633914947313713215noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-25828936.post-22696036311245004972009-01-12T08:11:00.000-05:002009-01-12T08:11:00.000-05:00I am also an Acromegaly sufferer, diagnosed in May...I am also an Acromegaly sufferer, diagnosed in May 2007 and had transphenoidal surgery in Sept 08, awaiting date for 2nd surgery as I had remaining tumour. Feeling good though. Good luck with your tests. Im a 41 year old lady with 3 young daughters.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25828936.post-50501968887024866642008-12-02T18:29:00.000-05:002008-12-02T18:29:00.000-05:00Dear Amy,As a fellow Acromegaly, I am truly happy ...Dear Amy,<BR/><BR/>As a fellow Acromegaly, I am truly happy for you and your family. I am 36 yrs old, have a 5 yr old son and a phenomenal husband who was and still is very supportive during my whole Acromegaly pre/post diagnosis. We live in Cornwall, Ontario Canada. <BR/>I was diagnosed with Acromegaly in July 2006 and was operated on in September 2006 via my upper lip...lots of nasal packing which was not pleasant. (By the way, I am a great fellower of Alecia's Blog hence where I found your blog)I had a 3cm macroadenoma. Unfortunately, I still have residual tumor. I have my monthly Sandostatin injection (20mg) that I have to take for life to control my GH levels. I had many episodes of weakness, nausea, fatigue post surgery. I was exhausted and frustrated as certain doctors could not explain my symptoms but I know that my body was adjusting. You know those hormones!!! It has been 2 yrs and I am on my way feeling better. <BR/>I am sending you lots of hope on your journey. From one "polite pesky" to another - Julie St-JeanJulie S.https://www.blogger.com/profile/00177725669562224200noreply@blogger.comtag:blogger.com,1999:blog-25828936.post-34275217358122361802008-09-08T21:12:00.000-05:002008-09-08T21:12:00.000-05:00I did miss this! How, I have no idea. Man. I'm ...I did miss this! How, I have no idea. Man. I'm glad they've found a diagnoses and I know you must feel better having someone actually understand what is going on with you but the worry still must be there. <BR/><BR/>I'll be sending you many many good thoughts and prayers.Deanahttps://www.blogger.com/profile/16031154927371849065noreply@blogger.comtag:blogger.com,1999:blog-25828936.post-58644616125278908512008-08-29T08:51:00.000-05:002008-08-29T08:51:00.000-05:00Congrats! I always knew you were a sicko but I'm g...Congrats! I always knew you were a sicko but I'm glad there is a name for it and that you are going to have a plan of action.<BR/><BR/>I know these years have been rough and I'm so glad that there is a light at the end of the tunnel for you and for the fam.<BR/><BR/>love, love, love you!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25828936.post-70046197091663742672008-08-26T19:29:00.000-05:002008-08-26T19:29:00.000-05:00Glad you came by...I had a friend a while back who...Glad you came by...I had a friend a while back who was diagnosed with acromegaly as an adult. Circumstances changed and I haven't seen her for a while. I'm glad you finally found out what it was, I felt the same when my doc diagnosed me with hypothyroid. Anything's better than feeling crazy and misunderstood!Jenniehttps://www.blogger.com/profile/05686985033339478927noreply@blogger.comtag:blogger.com,1999:blog-25828936.post-9508768445775913762008-08-26T14:30:00.000-05:002008-08-26T14:30:00.000-05:00Well, Congratulations on finally having a diagnosi...Well, Congratulations on finally having a diagnosis! I truly understand why you would be celebrating in the sense that as you said..There Is A Name for it!<BR/>I have such mixed feelings about doctors and how really dismissive they can be....Finding a doctor who stuck with you and stuck by you too....What a Miracle---ESPECIALLY today. May yoyr appointment with this specialist come through quickly, my dear.OldLady Of The Hillshttps://www.blogger.com/profile/02458879772193114892noreply@blogger.com